Including Aidan

Inclusion is a trigger word for me. It’s the kind of word that makes me want to pull out all of my hair and run screaming for the hills.

My son Aidan has an undiagnosed developmental disability, and I have years of experience now with IEP meetings.

The first years of Aidan’s schooling were hard for all of the usual reasons. As his educational team, we did our best to include Aidan and learn from each other, but we also came to the table with different expectations.

While I will continue to beat the drum for inclusion at school, I realize that school is not the only place Aidan will experience life. While it hasn’t exactly been easier to involve him elsewhere, it’s been more of a priority.

Read the rest here…..

Meth Labs and Tall Tales

Ok, this one was my favorite. I invited my Facebook friends to caption this photo of Aidan and his cousin Owen. You, my people, proved yourself to be witty and hilarious and a teeny bit dark.

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First place for surgery reference goes to Christine: 

Yeah dude, I know you’re tired. I am too–you know after two major surgeries and opening my back wide open and stuff. But you’re tired? Sure! Me and my titanium back can carry you!

First place for surgery AND Superman reference goes to Joanne:

I said TITANIUM…not Kryptonite…duh!

First place for preach it sister!  goes to Lynn:

It’s called “kale.” They think we’ll eat it if they color it red….don’t touch it!

First place for calling our boys out as studs goes to Michelle:

It’s hard to be as popular as we are, Super A. THIS should protect us from all those girl cooties.

First place for being super close to the truth goes to Nancy:

We admit the frogs have all escaped, but we have deduced that yes, frogs do have lips.

And the grand prize of a hot tub (which I’m totally not buying) for dropping these adorable boys into a Breaking Bad scene goes to my brother Scott:

You lost your partner today. What’s his name – Emilio? Emilio is going to prison. The DEA took all your money, your lab. You got nothing. Square one. But you know the business and I know the chemistry. I’m thinking… maybe you and I could partner up.

And the truth is:

Obviously they were dissecting a dead bird on the back deck of their Pop’s house. Duh.

*****

Some more great answers:

Michelle: So Aidan, I hear theres a mold problem……we got this.

Carrie: No job too small.

Joanna: Aren’t there child labor laws against this?

Eileen: Dude, our Moms went a little overboard with the no germs thing.

*****

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Food for Thought

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Food for Thought – September 8, 2014 Edition

I Thought We Had More Time – By Jamie Krug on the HuffPo –  A story about a child who realizes he’s different and his sister’s beautiful response.

No Owey, you’re going to be really fast one day. You can grow into my sneakers soon and I’ll give them to you — even though they’re pink — because they light up and that makes people really fast. And you should ask Daddy to help you with your running skills. Daddy’s really good at stuff like that. I bet you’ll even beat me one day! She told him.

When Patients Read What Their Doctors Write – By Leana Wen on NPR – An important piece about doctos and patients working together. I always tell parents of kids with chronic health issues to ask for the clinic notes from the doctor. It’s cheaper and easier to ask the doctor than to go through a medical records request.

After the first year, the results were striking: 80 percent of patients who saw their records reported better understanding of their medical condition and said they were in better control of their health. Two-thirds reported that they were better at sticking with their prescriptions. Ninety-nine percent of the patients wanted OpenNotes to continue, and no doctor withdrew from the pilot. Instead, they shared anecdotes like mine. When patients see their records, there’s more trust and more accuracy.

Good Night, Margaret – Rick Gershon and Catherine Spangler in the NYTimes – A beautiful love story about two people with Muscular Dystrophy.

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So, what else do I need to be reading?