Snippets of Undiagnosis

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So next year on Undiagnosed Children’s Day, the day I totally made up, I will have figured out how to do a blog link up so we can hear from everyone. I’ll also remember that it happens on April 13th, so I can put the word out properly. Until then, check out these other stories….

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One Bite at a Time

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Metamorphosis to Health

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Uncommon Sense

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Loving Little Ellie

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Orange This Way

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I even discovered that our undiagnosed children have their very own acronym – SWAN – or Syndromes Without A Name. And here I was feeling left out.

For more Seven Snippets, visit Bringing the Sunshine!

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6 thoughts on “Snippets of Undiagnosis

  1. Heather, thank you very much for getting to know my son Zachary. Aidan is a gorgeous boy and I absolutely love his eyes. Also, thank you very much for linking my blog one bite at a time. It is absolutely wonderful to have an undiagnosed day to raise awareness, what a great idea!
    I will be dropping by your blog to check on your handsome boy.

  2. I think Undiagnosed Children’s Day should be a real day, embraced by all. Why don’t you organize it for next year? I bet lots of bloggers would promote/support it if given enough of a heads up!

    Thanks for participating in Seven Snippets!

  3. Hello, I just wanted to let you know that the SWAN UK community of bloggers is growing rapidly – you can access most of them from here http://swanuk.wordpress.com/swan-uk-bloggers/.
    The UK undiagnosed community loves the idea of an undiagnosed day and are looking to get going on awareness raising activities next year so it would be great to talk to you about how we can all work together to support it, if you get a chance drop me a line at SWAN@geneticalliance.org.uk. Thanks, Lauren

  4. Hi Heather,
    Will you do the blog link up this year for Undiagnosed Children Awareness Day, as you planned? I was just wondering because I wrote my blog post for it today! 😉

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