Purple Day Fact Three

There are two major groups of seizures; primary generalized and partial. Within those groups there are many different kinds of seizures which are named according to what they do to the brain and body. Aidan has absence seizures which are characterized by staring into space. He also has myoclonic seizures which present as his hands flying out and his legs flexing. Aidan also has complex partials which are very difficult to tell if they are a seizures or not.

This is why it matters to me:

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8 thoughts on “Purple Day Fact Three

  1. Hi Heather..I had written to you earlier last year that Aidan and my (also undiagnosed) granddaughter Katelyn Doyle not only looked alike but have very similar issues…she has had 2 overnight MRIs for epilepsy…her current medication seems to be much better…I think her other medication was actually causing seizures and making her feel unwell and unhappy..She has been to see Anat Baniel last November and going again next month..She just turned 7…was to see the orthodontist yesterday..they are recommending pulling out 5 of her baby teeth to make room for the permanent ones (they don’t recommend braces for special needs children)…Good luck with Aidan…he is sooo cute!…Happy Easter!…Jackie Bastarache

  2. That is such a great shot!
    Thanks for the post on seizure types. So many people still only think of the “grand mal” (old term) seizures, not realizing there are more types and even though they may look less scary to an outsider, they are still important, still damaging, and to us Purple Mommas and our kiddos, very real.

  3. Pingback: Tomorrow is Purple Day! | Mixed Up Mommy

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    Chat soon!

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