Food For Thought

IMG_3327October 21, 2013 Edition

Whoirun4 is an organization that pairs people with disabilities that prevent them from running and runners who, well, run. This is what they say about why they do what they do:

The mental and emotional encouragement for both runner and honorary runner is proving to be a whole new level of motivation and awareness. Runners are able to find a whole new sense of purpose in their running while sharing who they are running for and bringing awareness to diseases and disabilities of all types.

There are hundreds of runners waiting to be paired so check it out. I love this idea because any time people with disabilities can be visible and known, well, it’s better for everyone.

(Thanks Reader Renee)

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We’re still waiting for the price of exome sequencing to come down but we have done some genetic testing on specific genes that could tell us more about Aidan’s Epilepsy. The results could help steer his treatment. This article by Marilynn Marchione addresses a study at Baylor College of Medicine that was recently published in the New England Journal of Medicine.

(Thanks Reader Rick)

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If you’ve been following the story of our home renovation and thought it was all over, you are wrong. With an incredible show of generosity and “getting it”, our builder has again volunteered to oversee another accessible renovation for a friend of ours. Read what people had to say about participating in the Bowie House project and then check out the Chanel 6 report on our friend Miles. And yes, Aidan gets a little air time too because he’s just that cute. You can get involved too. Giving a child freedom, safety, and independence in his own home is something you really don’t want to miss out on.

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Finally, the TED talk I’ve been waiting for. Pretty please take 20 minutes to watch this. Bookmark it and come back later if you must but don’t miss it. “Children are dying. We can do better than this.”

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What about you? What have you been reading, watching, learning?

Food For Thought

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October 14, 2013 Edition

I realize I’m very late to the Medical Marijuana party but I finally watched the CNN documentary “Weed.” It’s very informative and easy to see that parents of kids with Epilepsy, and other diseases, want help.

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Here is an ABC News article about a man with a rare tumor that caused seizures. His seizures have been treated with a new minimally invasive laser surgery. It’s another good read about the suffering that seizures bring and the lengths people go to treat them.

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And here is an incredibly convicting article from Speak for Yourself. The developers of this app have thrown out this bit of wisdom for the techie age, “We are becoming more and more convinced that informed, parent-driven AAC implementation is more effective than under-informed SLP-driven AAC implementation.”

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What about you? What have you been reading?

Food for Thought

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September 30, 2013 Edition

I thought I’d share this post from HuffPo Blogger Elad Nehorai who writes of his marriage,  “it was in the practicality that I found the love I was looking for.” Y’all loved my letter to my husband so I think you’ll like this too.

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The Paralympics are on for Sochi this March. NBC and NBCSN will air fifty hours of the competition as opposed to 10 hours of the Paralympics in London, and another 66 hours for the 2016 Paralympics in Rio. This is huge. It’s giving these accomplished athletes the ability to be recognized for their achievements and gives hope for the next generation of athletes.

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One challenge of working in the medical marijuana industry is that banks have considered those transactions to be money laundering. Bank of America announces a change and will accept Washington State Marijuana revenue.