Food for Thought – November 24, 2014 Edition
I tossed the book aside and opened another, hoping that this time the “big” stuff would go unmentioned. The pictures were different, but the words were echoes of the same: big brothers doing big boy things. I tried another… and another. It was all the same, a clear message spelled out in primary colors and smudged pastel. Big brothers can walk. Big brothers don’t wear diapers. Big brothers do not do things the way my son does. And I couldn’t stop myself from crying.
Despite the consensus statement from the 2004 meeting, the disagreement and confusion about diagnosing cerebral palsy continues, filtering down to families and the public. The limitations of the term cerebral palsy and the “wait and see” approach to diagnosing the condition delay the identification and tracking of symptoms beyond motor deficits.
Supersurvivors – by Feldmand and Kravits. This book answers the question we Medical Moms hear a lot, “How do you do it?” The short answer is, “We do what we have to do and you would too.” This book is full of research and compelling personal stories that give the long answer.