If you follow me on FaceBook, which you totally should, you would know that I saw TWO unicorns today.
If you define unicorns as beautiful, miraculous creatures that are magical, which Websters most certainly does not, but I do, so there.
But let’s back up to my first unicorn sighting several months ago. You will NEVER guess where the unicorn was frolicking. Seriously. I’ll give you a hint…it’s the LAST place you’d think of.
Exactly. An IEP meeting. In the early years of IEP meetings (school meetings for Aidan) I had my share of sleepless nights, crying, and even a day of vomiting. There is a narrative out there that goes something like this:
Schools only care about money. Teachers only care about what’s easy. All of the professionals at an IEP meeting think they are smarter than you. School personnel will make you pry services, accommodations, and modifications out of their cold, dead hands. Parents take heed…. without a swanky lawyer your child will just waste away at school.
Hence, the vomiting. While it’s obviously not a helpful narrative, there are enough IEP horror stories out there to keep it alive. My early IEP meetings were emotional and frustrating, but they were most certainly not horror stories, and yet my stomach still clenches a little before I have to sit at that long table with all of the people who have compassionately gone out of their way for my son.
There have actually been unicorns at my IEP meetings for the past several years. (We miss you so much Ms. L) This time it came in the form of a general education teacher. Looking at special education from the outside can be incredibly helpful. While we were discussing Aidan’s driving skills and what he may or may not be able to see, his general education teacher commented that quite possibly Aidan was crashing into things because, really now, doesn’t that sound like fun? YES! Sometimes it’s best not to over think things.
The next unicorn at that meeting came from Aidan’s speech therapist who has been trialing a free speech app with him. He’s been doing well with it so she asked the school to buy the complete app for his iPad. Remember the prying things from cold dead hands? There was none of that. I just signed a magical form and he gets the app. Poof.
I requested that an AAC specialist help us set up the new app and follow Aidan regularly to get him started. I have confidence in my team and I appreciate their skill set and am especially encouraged by their confidence in Aidan. However, Augmentative and Alternative Communication (AAC) requires specific expertise. Because of the above narrative, I’ve been bolstering myself to make the case for this service. Enter today’s first unicorn…the school agreed to bring in a specialist without me even having to pull my hair out, cry or puke.
Let’s get Aidan communicating and find out what he’s really thinking. YIKES!
Then I took Aidan to the neurologist. These appointments aren’t really stressful but they’re not particularly fun either. They go something like this:
Aidan still has seizures. That really stinks. His meds aren’t working. Here, let’s try another medication even though it probably won’t work either. Then, let’s have this same conversation in six months when we’re both older and more tired.
Aidan has seen the same neurologist since birth. He listens to me and answers my questions. Today I was determined to ask about Medical Marijuana. I completely understand why doctors would have reservations about MM. It’s not FDA approved, there isn’t enough current data, and it’s a little bit not particularly legal at the federal level. With their livelihood and reputations on the line, I understand their hesitation. Enter the second unicorn…our neurologist said not only that he would eventually approve it, but that he can get the necessary second doctor on board as well.
Before he’s willing to say that Aidan has failed reasonable treatment options, there is one more pill to go. I’m waiting for my third unicorn as this would be cheap and easy with possibly no side effects. It’s been known that some infants with seizures have a wacky vitamin B6 issue. Aidan didn’t have seizures as an infant but most recently it’s also been concluded that large doses of B6 can help older kids with seizures (I’m not a doctor and this is not medical advise. Always consult your physician before taking what I say as truth).
So, seriously, a few vitamins could make this stress go away?
Bring on the UNICORNS!!!
And since unicorns are clearly real, check out this recipe for Unicorn Poop cookies! Thanks to Reader Michelle for this important snack!
What about you? Have you seen any unicorns lately?